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Living with an incurable illness isn’t hard,
waking up each day with pain isn’t hard, 
feeling alone and confused isn’t hard.

Having an ileostomy bag isn’t hard,
being insecure about my body isn’t hard,
giving up dreams and desires isn’t hard.

Endless hospitalizations isn’t hard,
a PICC line in my arm isn’t hard,
enduring chemotherapy isn’t hard.

Constant weakness and fatigue isn’t hard, 
taking over 20 pills a day isn’t hard, 
losing hair and vision isn’t hard.

Not knowing what will happen and no answers to why I can’t get better is hard.