10 important things I’ve learned about being a new ostomate

So much of my life has changed since having ileostomy surgery.
Author:
Updated:
Original:
Some days I struggle with the concept that my stoma is for life.

Some days I struggle with the concept that my stoma is for life.

In January 2017 I had my large bowel removed because of severe Crohn’s disease. I was anxious since this was a permanent ostomy, but I had to keep reminding myself that it saved my life! Still, I wish I’d known a bit more about what to expect before and after surgery in order to prepare myself. 

Here are ten things I've learned since being a new ostomate.

1. I now have a thing for high-rise underwear.

Seriously, who knew granny panties could be so cool?! There’s no point in denying it. Of course, everyone's different but I'm definitely one for comfort over fashion trends. With a good pair of high-waist underwear on, the pouch felt secure and nobody ever knew that my ostomy existed.

2. There’s a lot more to life than body image.

Scars, stretch marks, surgery wounds. These are the things that make me special. I admit that having a stoma is pretty scary at first, but I was amazed at how many other people in the UK (and the world) are living with an ostomy — there are millions of ostomates! For many years I was caught up on having the perfect body, but guess what, my body is already perfect.

3. I’m the ultimate multitasker!

Hands down, I've officially named myself the winner for 'best multitasker'. I mean really, I'm probably pooing whilst writing this. And I can guarantee you that I’ll probably be pooing whilst carrying out most of my normal daily activities and nobody will ever know it.

p.s. Having a sense of humor helps me to stay positive.

4. Some food does not digest the same way as before.

Sweetcorn has become my worst enemy. I’ve also been turning down salads. There’s a whole list of things to avoid with a new stoma, and chewing well is highly advised. Trying small amounts of vegetables here and there doesn’t bother me, but I know my limitations and what’s definitely a no-no for now.

5. I definitely took farting for granted.

Everybody around me can still fart. Sounds silly I know. I get a little bit jealous, and I think that’s normal. Although the stoma does make farting noises, there’s nothing like the original way. However, now I don’t have to blush when the person sitting next to me lets one out and blames me — it’s definitely not me. There are many positives to this ostomy life.

6. “I would’ve never known,” is the most frequent saying I’ve heard.

If I had a £1 for the number of times I’ve heard this in the last 10 months I would be rich. It’s amazing what good clothes can do. And if you empty frequently enough to avoid the bulge from under your clothes, people will never know you have an ostomy unless you tell them.

7. I realized who was there for me.

It was pretty rough for a few months recovering from major surgery and then getting to know how the stoma works. Accepting an ostomy wasn’t just something I had to do. It’s amazing how having an ostomy made me realize who was there to support me. I’m still the same person as before, I just poop in a slightly different way. If someone loves you then it won’t matter.

8. It’s okay to feel anxious.

At first, I found myself constantly checking the bag for leaks and if there was any poo smell was coming from me. This isn’t true though, although you still might think that. The anxiety has actually gotten better and I don’t feel worried all the time. When you start feeling unsure of yourself, just remember you’ll have more confidence over time.

9. I have no limitations.

Crohn’s disease held me back from so much, but now I have no limits – travel, swimming, sports, work, everyday tasks – everything is so much easier for me with an ostomy. For one, I don’t have to run off to the toilet all the time. And secondly, I don’t have to plan my day around the toilets. That's very freeing.

10. A leak caught me off guard.

If there is one major tip I can give, it’s to carry extra ostomy supplies with you at all times. You might have a good feeling about a secure bag change, but trust me, it'll leak when you least expect it. Usually when you are wearing your best attire. Just remember to take spares and you’ll be okay!

With all this in mind, just know that you’ve got this. Deal with things as they come. Remember that you are stronger than you think. You’ve fought illness and had life-saving surgery. Now’s the time to take all the opportunities your new life has to offer!

Article credit: SEMICOLON; choose to keep going