In a world that’s still struggling with the concept of life-saving ostomy surgery, India comes chock full of psychosocial taboos. In addition to the challenge of costly medical supplies, ostomies are widely viewed as unacceptable in this country and can even become barriers to pursuing careers and relationships.
Filmmaker Anisha Vijayan recognized the need to educate the masses about living with an ostomy in India. After months of interviews and countless hours of research and production, her documentary 'No More Secrets' was released earlier this year. She shared with OC the inspiration behind creating the film and how it has offered many ostomates encouragement in South Asia.
“My grandmother, Gita Menon, was diagnosed with rectal cancer in 2012. Cancer is such a strong word in India; we all thought this was the end for her,” Anisha said. She became very weak from chemotherapy, so the doctors gave her one last option for treatment — ostomy surgery. Gita regained much of her strength back after the operation, however, family members noticed she was falling into depression.
Anisha told Webindia123, “what makes it worse is that the person with the ostomy imprisons themselves with their constant feelings of shame and they stigmatize themselves.” Gita refused to even look at her stoma, let alone change the pouch, so Anisha’s Aunt assisted for six months after her surgery. “She felt so ashamed of it,” Anisha said. “It was painful to watch her go through this.”
A turning point came when a nurse named Nisha came for a visit and insisted that Gita look in the mirror at her reflection and acknowledge her ostomy. The family described this moment as “life-altering” not only for Gita but also Anisha who set out on a quest to find videos of Indian ostomates sharing stories so her grandmother would feel less isolated. Much to her surprise, there was nothing. “It was at that moment I decided to go ahead and make this much-needed film,” Anisha said. “My mother encouraged me to create a documentary to bring awareness and acceptance in India.”
Anisha connected with Dr. Harikesh Buch from the Ostomy Association of India who introduced her to several ostomates within his organization. That’s when Anisha first met Parul Mistry, a young Indian woman who had urostomy surgery because of bladder disease. “I saw a hidden depression in Parul’s eyes. One that was unique because she appeared to be a very positive person otherwise,” Anisha said. Parul kept her illness and ostomy a secret. None of her friends knew, not even her best friend. She was afraid of their opinions because even her own relatives didn’t accept it; saying they couldn’t arrange marriage because of her urostomy.
After that meeting, Anisha decided to base the documentary on Parul's ostomy secret. She wanted so badly to free her from the stigma, saying “tell your best friend or not, but just find the courage to accept your ostomy and live your best life.” During filming, Parul's attitude seemed to change. “The more openly she spoke about her journey, the more confident and self-accepting she became,” Anisha said.
Since its debut in January, 'No More Secrets' has made a positive impact worldwide. Ostomates from China and Vietnam are commending the film for bringing more awareness to their countries as well. "This is the reason I made this film; to help ostomates understand that they don't need to live in fear of judgment,” Anisha told United News of India. In a region where ostomies are so deeply stigmatized, there is now hope for a future filled with greater acceptance thanks to Anisha and Gita's story.