Trish Massart is living her best life by helping other ostomates live theirs

Surviving colon cancer was just the beginning.
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In the early summer of 2012, Trish Massart’s life was just as she wanted it. “I was living the best life I could have ever imagined," she wrote on her blog. She lived in the home of her dreams in Ottawa Ontario with her two dogs, surrounded by countryside and friendly neighbors. Trish had a great career, enviable lifestyle, and her social life was filled with friends from all walks of life. She said, "It was my perfect version of, well, perfection.”

All of that changed when, at 46, she was diagnosed with stage IV colon cancer. While preparing for a Half Ironman in Austin, Texas, Trish became ill with what she thought was the flu. Her initial diagnosis was an inflamed gallbladder and possible pancreatitis but then began vomiting feces. At this point, her doctors began to suspect something far more critical than cholecystitis. A CT scan revealed a three-inch tumor in Trish's transverse colon which had fully occluded, causing the vomiting. A colonoscopy confirmed what they suspected — cancer.”

Her prognosis was poor. Trish said, “I was considered inoperable and maybe if I was lucky, and if the chemo worked well, I had a 6% chance of surviving 24 months.” In the days following her devastating diagnosis, she was understandably terrified saying, “Dying was all I could think about. And I was scared shitless.” But Trish loves proving people wrong. After numerous rounds of chemotherapy, six major surgeries, countless procedures, scans and tests and months of recovery, Trish entered remission against all the odds. “I came out the other side somewhat intact and, well, better for the experience,” she said.

One consequence of her extensive treatment was an ileostomy. Before having surgery, Trish knew very little about ostomies. Her only prior experience was that of a work colleague who had his colon removed due to cancer. “After his treatments and recovery, he came back to work with a colostomy. He took the time to explain to us how the colostomy saved his life and how he was going to have it for the rest of his life. He patiently answered all of our questions. And yet, I remember thinking in my naive way that I could never be okay with an ostomy.”

Trish didn’t have a choice. During a fifteen-hour operation, surgeons removed nearly 24 inches of her ileum and nearly 63 inches of her colon. She currently has about nine inches of her sigmoid colon remaining which she fondly calls her “semi-colon.” Her ostomy was a surprise. “I was clueless about my surgery. I didn't even realize I had an ileostomy. But on the first day on the surgical ward, an ET nurse came to change the ostomy appliance. I was fascinated by what I saw.” Once she understood what happened, her questions began: What could she eat? How did she take care of it? What could she wear? Could she still run with it? Astonished by her tenacity, the doctors didn't have answers. It was then Trish took matters into her own hands.

She had questions that dietitians and doctors couldn't seem to answer. As a triathlete, Trish felt she needed to do more research on nutrition. "Missing my gallbladder, parts of my liver, my colon and a 24 inches section of ileum, I had to find out which nutrients I would be challenged by." She wanted to know, "Could I use food to manage ileostomy output? Could I run a marathon? Could I strength train? What would chemo do to my digestion? And so on. I became a student of all things colon cancer.”

Since the diagnosis and surgery, Trish committed herself to learn all she could about nutrition, fitness, and lifestyle for ostomates. Now she's using her education and knowledge to assist others through In The Bag Nutrition. “My goal as a nutrition and lifestyle coach is to help others and to provide ostomates with real-world advice," she said. Trish teaches how to eat healthfully, exercise safely, and embrace life fully with one-on-one coaching. For Trish 2.0, starting over and fully embracing life is a vow she reaffirms every day. “Before cancer I spent 50% of my time planning my future, 40% ruminating my past and 10% living in the present. What bullsh*t. All we really have is now. Each morning when we wake up, we get to make a choice. For me, I choose joy.”